Engage Aotearoa

Category Archives: Service-user Movement

Hearing Voices Network Releases Position Paper on DSM-5

Hearing Voices Network UK has released a position statement on the new Diagnostic and Statistical Manual of Mental Disorders (DSM-5), calling for input from the wider community. Read on for an excerpt and click the link at the bottom to keep reading and leave your comments.

“Position Statement on DSM 5 & Psychiatric Diagnosis”

“DSM 5, the fifth edition of the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders – often referred to as the ‘psychiatric bible’ – has now been released in the wake of huge controversy and debate. The alternative classification system, ICD, is based on exactly the same principles. Some of the world’s most eminent psychiatrists have spoken out about the current system.

The former director of the US’s largest funding body for mental health research, the NIMH, recently described DSM as ‘totally wrong, an absolute nightmare’. The chair of the DSM 5 committee admitted that ‘We have been telling patients for several decades’ that the biological causes of distress are about to be discovered, but ‘We’re still waiting.’ Another senior psychiatrist said, ‘Patients deserve better.’ In the UK, clinical psychologists have challenged the use of diagnosis and the ‘illness’ model.

The Hearing Voices Network, alongside many of our professional allies in psychology and psychiatry, has serious concerns about the way we currently understand, categorise and respond to mental distress . We also recognise the confusion that can be caused when accepted facts, often presented to service users as truths, are challenged.

We believe that people with lived experience of diagnosis must be at the heart of any discussions about alternatives to the current system. People who use services are the true experts on how those services could be developed and delivered; they are the ones that know exactly what they need, what works well and what improvements need to be made. This statement outlines the main issues, as we see them, and invites people on the receiving end of a diagnosis to have a voice in this debate.”

HVN Position Statement on DSM5 and Diagnoses: Download & distribute the pdf file

Read More Here

http://www.hearing-voices.org/about-us/position-statement-on-dsm-5/

WDHB would like your feedback about the Asian Advance Care Plan Leaflet and Form

Invitation to Asian community members and health professionals

WDHB would like your feedback about the Advance Care Plan Leaflet and Form

The National Advance Care Planning Cooperative team and Waitemata District Health Board ACP clinical coordinator is seeking feedback from Asian communities and health professionals about the attached Advance Care Plan leaflet and form currently available in English.

1.      The Advance Care Plan Leaflet (tri-fold brochure format)

This leaflet provides information about Advance Care Planning by promoting awareness about what to plan ahead for future health care including personal care,  treatment preferences for end of life situations, what can be done and who to talk to.

2.      The Advance Care Plan Form (4 pages)

This form is for individuals to document their personal care and specific treatment preferences for end of life situations. Additionally, it is about the existence of a will, and the location of important papers and other practical matters.

<<Advance care planning Leaflet>> <<My advance care plan form>>

Due to the sensitive nature of the subject matter, the Advance Care Plan Cooperative team would like your views on: the appropriateness of the design/graphics; the colour; the wording used on the leaflet and the form and; whether if there is a need for improvements. In addition, we are trying to find out if there is a need for the form and the leaflet to be translated into different Asian languages.

How to provide feedback:

1.      You can complete the online feedback form by clicking on this link

        https://www.surveymonkey.com/s/8LVDKN3

Or

2.      You can complete the attached feedback form and email back to

        Stella Song: by email stella.song@waitematadhb.govt.nz

<<2013-5-17 SM ACP Feedback Form>>

Or

3.      If you know of others who may be interested to provide feedback, please feel free to send this request for feedback and the form to your networks.

Or

4.      If you wish to run a focus group with others to collect feedback using the attached form, we would be most appreciative, please send us the completed form(s) by post:

        Attn: Stella Song – Asian Health Support Services, Waiteamata DHB, Private Bag 93503, Takapuna

Deadline for feedback is Friday, 10 June 2013

If you would like to know more about ACP please go to www.advancecareplanning.org.nz. Your assistance, feedback and comments would be very much appreciated and valued by the ACP team.

 

Asian Health Support Services I Waitemata DHB

p: 09 4423239  I m:  021 2402230  I   f:   09 4868307   

www.waitematadhb.govt.nz

 

IIMHL Updates Now Online

You can now read the archive of the International Initiative for Mental Health Leadership Updates online.

Follow this link to the IIMHL Update Archive.

Hikoi for Better Mental-Healthcare Choices Builds Up to Petition Presentation at Parliament

Wellington_Hikoi_Events_29May11June2013

National Depression Initiative Update Issue 12

Issue 12 of the National Depression Initiative – NDI UPDATE ISSUE 12.

This issue is jam packed with lots of depression related activities happening across the country, as well as NDI specific, Pasifika radio adverts.

Please feel free to share this communication with friends, whanau/family, work colleagues and community groups.

If you would like your organisation, and the innovative work they are doing in the area of depression, profiled in an upcoming UPDATE newsletter, please email Kayte Goodward, Sector Relationship Manager at Lifeline.

Ph: +64 9 909 9216 | Mobile: +64 21 877 236

Email: kayteg@lifeline.org.nz

IIMHL and IIDL Update – 15 MAY 2013

2013 Leadership Exchange

Copies of video interviews with delegates attending the Network Meeting are now available on the International Initiative for Mental Health Leadership website, along  with the whiteboard narratives and workshops notes:  www.iimhl.com

Copies of keynote speakers’ presentations will be available shortly and IIMHL will also update you all on the formal evaluation in due course.

IIMHL Features

Sebelius: Bring mental illness out of the shadows

President Obama following lead of John Kennedy 50 years ago on improving access to care.

U.S. Secretary of Health and Human Services Kathleen Sebelius speaks during the opening plenary of the National Health Policy Conference organized by The Academy Health February 4, 2013 in Washington, DC

Story Highlights

  • When untreated, condition takes a heavy toll on our society.
  • Part of improving care is ending the stigma.
  • The President seeks a national dialogue to get more young people to seek help.

http://www.usatoday.com/story/opinion/2013/02/04/kathleen-sebelius-on-mental-health-care/1890859/

Creating A Place Of Healing and Forgiveness: The Trauma-Informed Care Initiative at the Women’s Community Correctional Center of Hawaii

Below is a link to a program brief that describes the Trauma-Informed Care Initiative at the Women’s Community Correctional Center of Hawaii, which is working to make the facility a “place of healing and forgiveness.”  Blending traditional Native Hawaiian concepts with the latest research on trauma-informed practices, the facility’s leadership has created a unique collaborative process for organizational change that includes staff, inmates, former inmates, community members, and representatives of community-based human service agencies. With a focus on educating staff, inmates, community partners, and the public about the value of trauma-informed environments and practices in healing, TICI creates opportunities for women to “live a forgiven life.”

This technical assistance document was developed by the National Association of State Mental Health Program Directors (NASMHPD) and Advocates for Human Potential, Inc. (AHP) under contract for the Substance Abuse and Mental Health Services Administration (SAMHSA), U.S. Department of Health and Human Services (HHS), and was written by Darby Penney.

http://www.nasmhpd.org/docs/NCTIC/7014_hawaiian_trauma_brief_2013.pdf 

IIDL Feature

Self Directed Disability Support (SDDS): Building community capacity through action research

This Australian research project explores how people with disability manage the transition towards self-directed disability support. Set against a backdrop of substantial reform with the introduction of a National Disability Insurance Scheme (NDIS), it is a collaboration between representatives of people with a disability and academic institutions to “investigate the impact and effectiveness of changes to self directed options for people requiring support, informal carers and support providers. It will also be a formative baseline for a longitudinal study examining service delivery systems pre and post the introduction of the NDIS”.

http://www.sprc.unsw.edu.au/media/File/SDDS_research_plan_FINAL.pdf

2014 Leadership Exchange

The 2014 Leadership Exchange will be in England in June.  City and date TBC soon.

Please note: IIMHL try to find articles, new policies, research that has been released or opinion pieces they think are interesting to reflect on.  Sometimes those who receive these may feel  is not accurate either for its use of data or not aligned with their views. IIMHL does not endorse any article it sends out as they try to rapidly share information.

Fran Silvestri

President and CEO, IIMHL

fran@iimhl.com

General enquiries about this update or for other IIMHL information please contact Erin Geaney at erin@iimhl.com.

May 2013 Issue of The Like Minds Newsletter

The latest issue of the Like Minds Newsletter is available now.

The feature article explores Richard Anderson’s experience of schizophrenia, the benefits of work and his strategies for keeping well.

They cover aspects of the Like Minds National Providers Hui and hear about the resilience focus of the Noho Wananga.

This month marks the launch of the DSM-5. Like Minds talks to a psychiatrist, an international mental health consultant and a mental health advocate to get their thoughts on the revised manual. Changing Minds Manager Tina Helm offers her full perspective as a separate document, Anticipating the DSM-5.

Journalist Robyn Yousef tells us why she waited so long to ‘seize the day’ and share her story about living with bipolar disorder.

Hikoi champion Annie Chapman is walking her way around the North Island to raise awareness about choice in mental health care. She explains what is driving her and how you can support her petition.

Mental health radio show Take It From Us recently celebrated its 20th anniversary. Sheldon Brown discusses his role as host and how the show came to be.

Finally, remember to sign up for Stigma Watch and check out poetry book Smells Like Sugar and SamRB’s second album Queen Street Acoustics.

You are welcome to email your feedback and story ideas to likeminds@mentalhealth.org.nz and, if you think others would enjoy receiving this e-newsletter, please forward this email so they can subscribe.

Pacifica Person’s Views on Mental-Health Recovery | Take It From Us Radio 14 May 2013

On Take It From Us on Tuesday the 14th, hear the views of a Pacific Islander ambassador for mental health recovery. Like Minds mental health promoter Keleni Talau’s journey through life has left a few scars but this week’s guest is exploring many options to cope. Listen to her story this Tuesday the 14th of May on PlanetFM104.6 at 12.30pm.

Listen live on 104.6FM at 12.30pm or online www.planetaudio.org.nz

OR if you missed the broadcast, listen for the next seven days @: www.planetaudio.org.nz/takeitfromus

Catch up on the last four shows online: www.likeminds.org.nz

And don’t forget the Facebook page @ Facebook.com and type ‘take it from us’ in the search box
Email: takeitfromus@mail.com for any feedback and comment/suggestions for shows.

Outcomes from Mike King’s Community Korero in Whangarei

Report: Mike King’s: “Community Korero” – Depression & Suicide Prevention

Feedback report by Aorangi Kawiti, Mana

Whangarei, Monday 8th– 9th April 2013

Support Team: Whangarei Coordinator: Aorangi Kawiti (Mana), Isha Waetford (Mana Rangatahi) Deeanna Matiu (Mana Admin Work Experience), Marama & Rowan Waddell, Janey Tana (Mana Wahine- Tane), Hone Tana (Man Alive), Shahni Bright (The Pulse), Arthur Harawira (Mana Kaikohe)

More than 150 people from across the Whangarei community, education, health, development & social sectors flocked to hear Mike King’s brutally honest korero on his very personal experience with depression, drug & alcohol addiction & suicide. Each of the three venues packed to capacity, The Hut at The Pulse, the May Bain Room at the Central Library and the Mana office, despite late changes in venues and media reports.

Sharing his story helped others to open up and share their story, identifying with someone who’s been there and no longer feeling so alone. Accepting himself, after a lifetime of longing for the acceptance of his father and everyone else when he couldn’t get that, is pivotal to who he is today and his ability to have a conversation about a subject as serious as suicide and depression that most are afraid to bring up, in case somehow talking about it may spread the contagion, bring more suicide or increase depression. Guess what? Talking freely about depression and suicide in a safe and caring environment is amazingly liberating and invigorating. Sharing the grief of suicide is healing, releasing us from blame and guilt when we understand we have done all we could to prevent it and accepting that despite our best efforts we may not have been able to stop someone we love dying through suicide. Empowering us beyond this is the hope that propels to do all that we can to save a life from suicide, starting with the conversation: “Are you okay?” “Do you need help?” “I’m here for you” “I care about you”…then staying till they get the help they need. We need to believe people when they let us know they are suffering. We can make it easier for people to talk to us, by being more open about ourselves and our own struggles.

Humour by nature, as a survival technique and a tool of communication, is huge in Mike’s story, opening a window into his life that is warmly empathetic of young fullas growing up and easily related to. Mike’s the ambassador for Key to Life, the charity behind The Nutters Club. The feminine view is well represented by Miriam Larsen-Barr, the Korero coordinator, Engage Aotearoa Service Director, www.engagenz.co.nz website creator and administrator with a handy MA (1st Class Honours) in Psychology. Youth team member Tai Tupou, Head Trainer/ Director of RIPPED Training, No1 Boot Camp Trainer 2012 comes highly recommended by the youth in the audience, with a good dose of coconut oil as a natural remedy for depression (also recommended in the korero).

Here is a list of recommendations that came from the discussions at the Korero 

1.      Talk about our problems with each other so we aren’t dealing with the tough stuff alone

2.      Take people’s feelings seriously – remember that young people have the same emotions as adults

3.      Don’t be afraid to ask someone if they are okay – we don’t need to fix their problem, we just need to listen and show we care

4.      It is okay to come right out and say ‘are you feeling suicidal?’ – asking this question does not put ideas into someone’s head, it gives them an opportunity to tell us about how they are feeling. Suicidal feelings are hard to talk about and asking the question makes it easier to do.

5.      Talking about why people feel suicidal is important, talking about how people attempt suicide is unhelpful as it accidentally shares methods – if someone is suicidal though, we need to know enough about what they are thinking to keep them safe and protect them from having the means to follow through on any plans they might have to act on their thoughts, so it is okay to ask people whether they have a plan and what that plan is

6.      Talk and listen to our own children the same way we would our friend’s children: When we talk to our children, listen to their hurt and try to get past our own hurt as parents that we have not protected them from everything

7.      Talk more about our own problems and how we get through them – when we are real it makes it okay for other people to be real, but silence brings shame and increases stigma

8.      We need to validate each other more, look for the positives in each other and reflect them back

9.      Be aware that antidepressant medication can increase suicidal thoughts and feelings for a time and report to your doctor if you notice this

10.  For people who are suicidal and depressed, nutrition can be really important. A number of Korero participants mentioned that eating coconut oil helped them improve their moods.

11.  Parents and teachers need to be on Facebook so they can respond to risky posts and offer their support – young people often say things on Facebook that they can’t say in person. Be there.

12.  We need to normalise mental-health problems and reduce stigma so people understand these problems are common and that they can recover from them.

13.  We need to make it okay to make mistakes

14.  We need to stop thinking it is someone else’s problem to provide the support, that it is not our business and that what happens in a family should stay in the family – we are smaller families inside the one bigger family of our community, it is okay to help people from other families or to seek help from people in other families

15.  We need to give ourselves permission and our children permission to take our masks off, ask for help and show we care.

16.  Be persistent – if we feel suicidal we need to keep asking for help until we find the person who can give it to us. If we know someone is feeling suicidal we need to keep offering our support until they are able to accept it.

17.  Get help – there are heaps of supports available from counselling and therapy to phone lines like 0508 TAUTOKO, youth groups like The RAID Movement and whanau supports like Supporting Families.

18.  Support needs to be individualised and take wairua/spirituality into account for people who have a spiritual perspective

19.  Find and share information about mental health, suicide and recovery resources – a lot of the info that was available at the Korero resource table is available online at the National Depression Initiative, The Low Down, The Mental-Health Foundation and the EngageNZ websites.

20.  We all need to feel accepted and included. Let’s accept and include each other more. What we do makes a difference.

Comments from Participants

“Your korero touched my heart.”

“I acknowledge your korero on suicide and you’re right, all the money in the world won’t fix it but talking will.”

“Tautoko your mahi and korero. Yes! We need to talk, hug, awhi etc to get the message out – “you are not alone”.”

“Absolutely fantastic korero, learned so much and totally believe sharing stories is a wonderful way of healing. I’m so glad our team attended.”

“The talk the other day was brilliant. Well really it was a discussion. It was very open, honest, inclusive and well worth taking the time to go to. Important things we got out of it are, talk, have a conversation, be yourself and know that you do not have the right to know if someone else likes you or not. Thanks very much I’m sure everyone took something useful away with them.”

Outcomes

Given all the shared conversations by people who care and the empathetic response of support from the community at this time when we are sadly aware of the deaths to suicide in Whangarei last year and increasingly over the past few years, it is with hope inspired by this presentation and the collective support it has received that we are glad to report some very real and positive results from this:

  1. Conversations were shared about depression, suicide and recovery in our community
  2. Conversations are continuing with whanau and community
  3. Increased information and awareness in the community (Community Resources Directory of recovery services online at EngageNZ, distributed at meetings for people to add to and have available in a prominent place at their service for people to access)
  4. Service providers and clinicians engaging to support whanau and community
  5. Survivors of Suicide Support Group, to meet monthly, for people who have lost someone to suicide, considered suicide and survived or are currently struggling with these feelings. We are engaged in planning and partnership activities to ensure this will be a safe and supportive group, with the intention of being able to begin in June or July.

Ma tatou tahi e awhi e hapai te kaupapa nei. Through all of us working together we share.

Report prepared by Aorangi Kawiti
Contact: kawiti.aorangi@gmail.com, 0226202262

Haka for Suicide Awareness and the Tu Kotahi Project

Students at Taipa Area School took part in the Cool to Korero seminar with Mike King at the beginning of March this year. Last week, Mike King of Key to Life Charitable Trust and Tai Tupou of Ripped Training returned to Taipa for their Kapahaka festival and were treated to the world premier performance of a haka for suicide awareness that the students created following the presentation.

Thanks to Tai Tupou, Engage Aotearoa is now able to share some footage of the haka here for everyone to see. The link below will take you through to a publicly available video shared on Facebook.

Click here to watch Taipa Area School’s Haka for Suicide Awareness.

Trigger alert: This is a powerfully expressive piece, created and performed by youth at Taipa Area School and they bravely take you on a journey through the full spectrum of emotion with this piece. If you have lost someone to suicide, we suggest watching this video with a friend, these kids don’t hold back for a second and there are a few explicit actions involved.

Newspaper Stories Keep Messages Alive and Well in Whangarei!

The Northern Advocate has published two amazing stories that take the Community Korero messages out to the wider community. Sharing these articles with friends and whanau might help someone you know to help themselves or help their loved ones. Please forward them around as widely as you can.

More Talk Needed on Suicide, Not Less – 22 April 2013

King: Learn to Like Yourself – 10 April 2013

Tu Kotahi Gets Up and Running

Since Engage Aotearoa and Key to Life first visited the Far North, Key to Life has created a student-led suicide prevention initiative called Tu Kotahi and linked in with youth ambassadors from Kaitaia College and Taipa Area School to make sure that it’s the youth themselves who are leading the charge to prevent suicide in NZ. Ezekial from Taipa Area School and Aleisha from Kaitaia College are on board and want to hear from other youth who have suggestions or want to get involved.

Visit the Key to Life Facebook Page to link in with Zeek and Leesh!

KTL Logo w Website